Learn more about PWS

Was your child or loved one recently diagnosed with Prader-Willi syndrome? Thanks to FPWR, a lot of exciting new discoveries are being made about PWS!

Prader-Willi Research Blog

The FPWR has awarded over $1.3 MILLION DOLLARS in research grants. Read the latest on PWS research from the chair of our Scientific Board, Theresa Strong, Ph.D.

Get Involved & Help FPWR!

FPWR is actively raising money to fund research projects on Prader-Willi syndrome. We need your support. Get involved with the upcoming events!

Research Blog

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Rachel's Blog

  • Futures Planning
    admin , 13 weeks 2 days ago

    One of the constants in PWS is concern for the future.  From the very beginning, we worry....

  • Elephants
    Rachel Tugon , 30 weeks 2 days ago

    After some interesting PWS chats lately, including our discussion about whether or not to tell...

  • ...on Mother's Day
    Rachel Tugon , 38 weeks 6 days ago

    Today was one of those beautiful Kentucky days that make me so glad that I live here. As part...

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